Newcomer to lymphedema

HOSPICE, genetics clinic, leaking legs, EMG, nerve conductions, phantom liquid feeling, chronic fatigue, chills, malaise, ankle pain, swollen feet, transient lymphedema, full body lymphedema, tissue hardness, dystonia, painful boil

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Re: Newcomer to lymphedema

Postby patoco » Wed Oct 10, 2012 9:56 am

Hi Diana

Super welcome to our family here - although, I gotta agree it sure was one helluva birthday present. I can sure think of other ones I would have rather had.

I am not very surprised about the hospital either though. A few years ago one of the leading hospitals in Canada did a study of the treatment of cellulitis in their ER. They found over one third of cellulitis cases in the ER were misdiagnosed and/or improperly treated. Just imagine, if this is one of the finest hospitals in Canada, what it must be like for a typical hospital.

I remember one time I went to the ER in a little town in Oregon called Roseburg. Mind you, I had these huge legs, brightly colored red, hot as molten lava and a super high fever. So what did the doctor ask? He ask me if I had a skin rash.

Geezzzz....I was 17 years old. I told him what I have is lymphedema and this redness, fever etc is an infection called cellulitis and this is how you treat it. Thanks God, he listened to me, otherwise I wouldn't be around today.

I so wish now you could get a referral to a certified lymphedema therapist. They could design a treatment/management program specifically for you and your individual needs.

In the meantime, please don't hesitate to ask any questions, share any concerns or anything else you want/need to.

Big hug to ya!


p.s. - here are some pages that might be helpful:

Lymphedema Cellulitis ... ulitis.htm

Lymphedema Cellulitis, Lymphangitis ... mphangitis

Leg Lymphedema ... lymphedema
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